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Welcome to Laughing through the Tears: The journey of a mom with a special needs son
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Stable Results, Hard Truths, and A New Beginning Ahead đžâ¤ď¸
We headed back to Ohio for Wyattâs annual hospital visitâour most important check-in of the yearâand this time we brought an extra set of hands and heart with us⌠Ava. â¤ď¸ We have been making this trip every August since 2008, and itâs always a bit of a âhold your breathâ moment. I know what I see in Wyattâs physical abilities. I know he has progressed some, but it never feels like much. So getting confirmation that he only declined minimally on one of the upper-limb tests was

Jessica Rownd
8 hours ago2 min read
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Weathering the Storms Together
It has been a while since I shared an update on Wyatt and our family. Since school let out for the summer, weâve been filling our days with trips, making memories, and bracing ourselves for a major milestone: Wynstonâs senior year. Iâve been meaning to write this for a few weeks now, ever since Tropical Storm Arthur came through Luling. It brought endless rain, roaring thunder, blinding lightning, and an exhausting string of tornado warnings. That night was terrifying for all

Jessica Rownd
Jul 144 min read
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Redefining Success : The Small Things that Mean Everything
Lately Iâve struggled with a question people ask with the best of intentions: âSo whatâs Wyatt going to do next?â or âWhat has Wyatt been doing since he graduated?â I see the looks sometimes when I answer. The head tilts. The wide eyes. âWell⌠heâs mostly been hanging out with me at home. He plays video games. He loves cleaning things with his Dremel.â And I can almost feel people trying to make sense of that answer. What I wish more people understood is how exhausting Duche

Jessica Rownd
Mar 132 min read
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Adapting, Overcoming, and Holding On
Itâs been harder and harder to make myself sit down and write a new blog post. Sometimes the days feel so full â physically, emotionally â that by the time I have a quiet moment, I donât have much left to give. But then Wyatt will look up at me and say, âMom, I just love you.â And somehow, thatâs enough to steady my heart. Some days are heavier than others. His needs can feel like so much. Itâs exhausting in ways that are hard to explain unless youâre living it. There are mom

Jessica Rownd
Feb 252 min read
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A new season of joy, kindness, and discovery
The past few months have been challenging. Iâve experienced some personal losses, but they came from choosing to prioritize my mental health and removing myself from situations that caused more stress than joy. For so long, Iâve tried to put family and friends firstâbut in doing so, I realized I was losing parts of myself. Thankfully, I had the support of loved ones who encouraged me to choose me . That support gave me the strength to refocus and let go of the heartache. It h

Jessica Rownd
Oct 21, 20252 min read
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Reflecting on 20 Years Ago: How the Past Shapes Our Present
Can you believe it's been 20 years since Hurricane Katrina? Back then, Patrick and I hadn't even been married a year. We were in the...

Jessica Rownd
Aug 29, 20253 min read
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Finding Balance in the Season of Grief and Acceptance
Caregiving is not just about physical support; it also demands emotional strength. Many caregivers experience what my friend called the...

Jessica Rownd
Apr 23, 20253 min read
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True Grit
What does grit mean? I have been struggling with my shoulder since the end of 2023 . I had steroid shots and physical therapy but as...

Jessica Rownd
Feb 7, 20253 min read
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Thankful for the person I am
A friend told me, "thank you for always being here and for just being you," and it really had me reflect on who I am and how I got...

Jessica Rownd
Nov 22, 20242 min read
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Better Together
I knew I could do it by myself but it sure is better with a partner. It isn't often that Patrick does something by himself. He doesn't go...

Jessica Rownd
Oct 10, 20242 min read
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This is a Hard One
At diagnosis we were told that Wyatt would live into his late teens, soooo now what? He will be 18 on Thursday. I have been in a scary...

Jessica Rownd
Aug 5, 20242 min read
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It's Been 2 years!
2 years ago on 4/19/22, Wyatt came home from school early because he was having a rough day since he did not take his medicine in the...

Jessica Rownd
Apr 19, 20242 min read
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Sooo you got an Orange
On Saturday I presented at the Jett Foundation Family Workshop. I wanted to post what I presented as my newest blog. It took me a long...

Jessica Rownd
Apr 9, 20246 min read
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Stop Worrying about Dying and Start Worrying about LIVING
This weekend we chose living. Nashville and Upchurch did not disappoint. So many times I get worried about the future instead of living...

Jessica Rownd
Mar 12, 20242 min read
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DETERMINED to have a great year
It's the start of the new year and like we always say, "how did the year go by so fast?" 2024 is going to be a big year for us. Wyatt...

Jessica Rownd
Jan 19, 20243 min read
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Annual week of mixed emotions
Every year, at the end of October, I feel my emotions being all over the place. Some years I know exactly why and some years I don't...

Jessica Rownd
Nov 6, 20232 min read
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Just Thinking Outloud
Sometimes I feel like I put myself in other's lives because it's easier than focusing on the craziness of my own. Sometimes I feel like...

Jessica Rownd
Oct 24, 20231 min read
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Scream It from the Dock
It's Duchenne Awareness Day 2023 and I need to share our story again to bring awareness to our nightmare diagnosis. We live everyday...

Jessica Rownd
Sep 7, 20233 min read
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Put it in the News
I feel like I'm failing because this blog has fallen lower on my list of priorities. I know I should write because it's cathartic for me...

Jessica Rownd
Sep 1, 20232 min read
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Trying not to feel too Embarrassed
Summer has come and gone in a blink of an eye. School started on August 9. It was a pretty low key few months with not much traveling....

Jessica Rownd
Aug 16, 20234 min read
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