Jessica RowndFeb 28, 20213 minWhat is Rare?...Perspective of Life with a Rare DiseaseRecently I was asked to speak for Rare Disease Day, which is February 28, 2021. The most recent request was by The Jett Foundation which...
Jessica RowndFeb 24, 20212 minLaughing through the TearsFor a while I have been reflecting and documenting my journey of having a family and one of my 2 sons having a terminal diagnosis. It is...