Project Coping
In previous posts I have talked about Patrick and his multiple projects going on at one time. If you know him you are probably smiling...
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Welcome to Laughing through the Tears: The journey of a mom with a special needs son
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Jessica Rownd
Aug 5, 20213 min read
Too hard to do it
As I sat and watched Wyatt lie in the MRI machine my heart ached. Last year he did a great job and was done in record time compared to...
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Jessica Rownd
Jul 29, 20212 min read
Rolling with the Punches
A few weekends ago we had friends over to watch the McGregor vs. Poirier UFC fight. I've never watched a UFC fight before but Patrick...
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Jessica Rownd
Jul 21, 20213 min read
Back to school
In my house no one likes to hear the words "when school starts" or "almost time to go back to school". I'm sure it is like that in most...
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Jessica Rownd
Jul 15, 20214 min read
You can't always get what you want
We have all heard it before, though it gets easier to understand as we get older it is still hard to hear the word "No". Over the past...
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Jessica Rownd
Jul 8, 20212 min read
The Connection of a Tribe
Almost every year for the past 10 years, Patrick and I have attended the Parent Project MD Connect Conference. It is an event where we...
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Jessica Rownd
Jul 1, 20213 min read
The Sibling View of Life with DMD
Recently I listened to a sibling view of life with the Duchenne diagnosis and wow it was eye opening. The four young adults that spoke...
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Jessica Rownd
Jun 24, 20213 min read
Waiting for the Storm
As hurricane season arrives here in the south it seems like we are always watching and waiting for the next storm. We watch the news and...
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Jessica Rownd
Jun 17, 20214 min read
Behind the Scenes
Do you ever look at social media and realize that most people only post the good things in life? A while back while working at Ochsner...
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Jessica Rownd
Jun 10, 20213 min read
Mean Mom and the Struggle for Independence
I have been told more than once that I’m the mean mom in the neighborhood. Apparently I am the mom who tells Wynston he has to come in...
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Jessica Rownd
Jun 3, 20217 min read
Behavior Struggles in Our Son with DMD
I wrote this 3 years ago when I was asked to be on a panel at the Parent Project Muscular Dystrophy Conference in 2019. In order to speak...
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Jessica Rownd
May 27, 20214 min read
Sometimes we have to do things we don’t want to do
I would like to preface this post that I am not telling this story for sympathy but to show how much a diagnosis like Duchenne has made...
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Jessica Rownd
May 20, 20214 min read
Is it over yet?
We are finally coming to the end of the school year. One that was filled with so many challenges. Wynston has been in school since August...
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Jessica Rownd
May 12, 20215 min read
The Toxic Emotion of Jealousy
I have written and rewritten this post about 5 times in the past few days. I was worried about what others would think about what I have...
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Jessica Rownd
May 6, 20214 min read
Fill My Tank Please
Many days I feel like I am running on fumes and wish I had more time for myself, my husband, my family, and my friends. I know I am not...
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Jessica Rownd
Apr 29, 20214 min read
The Universe is Speaking to Me Through Books
Lately after Wynston heads off to school I take a walk and listen to a book. It’s just a little time for myself to relax and enjoy the...
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Jessica Rownd
Apr 22, 20213 min read
Constant Motion...keep moving forward
Mardi Gras break 2021 was different for New Orleans...even though Mardi Gras parades were cancelled the celebration moved forward. Most...
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Jessica Rownd
Apr 20, 20213 min read
Living the Dream
I recently went to a baby shower and my aunt asked me, “So how's it going?” and I responded as I normally do, “Living the Dream”. We both...
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Jessica Rownd
Apr 15, 20215 min read
Let It Go
Since my last post I have been trying to think of what a good title for my next one would be and as strange as it sounds Let It Go keeps...
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Jessica Rownd
Apr 8, 20213 min read
Out of routine, out of sorts
As we all have routines and have come to depend on them, today proved that theory correct. Since the 2020-2021 school year started, I...
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