When friends become family...
Patrick and I grew up in the same community and had many of the same friends through grammar school and high school. When we started...
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Welcome to Laughing through the Tears: The journey of a mom with a special needs son
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Jessica Rownd
Mar 27, 20213 min read
Stronger than you think you are
The other day while completing Wyatt’s math lesson with him we had to have a heart to heart. Math is one of Wyatt’s hardest subjects. It...
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Jessica Rownd
Mar 23, 20214 min read
Stepping up or down in Wyatt's case
On Sunday March 21, Wyatt fell when stepping down into the garage. I was standing right there in front of him and watched it in slow...
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Jessica Rownd
Mar 19, 20213 min read
Wrigley and the Kindness of Strangers
In 2016 we started the process of getting on a list for Wyatt’s service dog. We knew the wait would be up to 2-3 years so we felt that...
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Jessica Rownd
Mar 18, 20213 min read
Where You are Now is Exactly Where you are Meant to be
Do you ever feel there is no way you are prepared to deal with the situation at hand? This can be anything from family and friend...
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Jessica Rownd
Mar 15, 20214 min read
Sometimes I feel prepared but really I am not
Last week was emotionally exhausting. It started off with virtual advocacy with over 400 people in DC on zoom calls. 2 other families,...
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Jessica Rownd
Mar 11, 20212 min read
Dreaming Big
DREAM BIG, the idea straight from Wyatt’s brilliant mind. As February began we heard of a competition put on by one of our favorite DMD...
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Jessica Rownd
Mar 4, 20214 min read
Sometimes it’s just appears UNFAIR
Wow...last night was a tough one. After leaving the boys room I told Patrick...oh my God that was sad and depressing and frustrating all...
104 views3 comments
Jessica Rownd
Feb 28, 20213 min read
What is Rare?...Perspective of Life with a Rare Disease
Recently I was asked to speak for Rare Disease Day, which is February 28, 2021. The most recent request was by The Jett Foundation which...
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Jessica Rownd
Feb 24, 20212 min read
Laughing through the Tears
For a while I have been reflecting and documenting my journey of having a family and one of my 2 sons having a terminal diagnosis. It is...
359 views7 comments
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