I have been told that sharing my story is giving a voice to others who do not feel comfortable to do it themselves. It's not easy to let everyone in to the hard times and heartbreak we go through. A follower of my blog wrote what she has taken from my writings over the past year and documented our story through her eyes. Even though I knew that the mom in the story was me, my eyes filled with tears as I read what that mom was going through. Not sure if that makes sense but I guess seeing my life from someone else's view helps to realize that I have been through a lot more than many go through in a lifetime, and I'm still standing.
Here is what she wrote:
Today is another day in the life of living with my son Wyatt who suffers with DMD. He was diagnosed at the young age of 1. My husband and I decided that we would do whatever it took to make him comfortable and live as normal a life that he could. It has been a learning experience for us all but we have made it our mission. DMD takes it’s toll on all of us but we have to stay positive. We are now a family of 5 and trying to survive for ourselves, our two sons, Wyatt and Wynston, and Wrigley, Wyatt’s service dog and pet. Some days have their ups and downs both emotionally and physically. A lot of tears, a lot of talks, and a lot of patience as we make memories, while trying to avoid the elephant in the room. I just want my child to be happy and I so want a cure for DMD. I know there are no guarantees in life but I can’t help asking why us? I hold back the tears and continue to go forward. I just have to be positive not only for myself but for all of us. Life goes on but seeing my son grow weaker and all the obstacles he has to overcome hurts us all. We have to focus on living because choosing death is not an option. Wyatt is 15 years old now and each day takes a toll on each one of us. We have made memories but the heartache is still there. God must have his reasons and I just have to accept that. It’s just seeing Wyatt getting weaker that really makes me want to cry. I love him so much and he try’s so very hard to do what he can. His smile, his rapping, his sweetness only makes me love him more. I feel so blessed to have my husband, and sons and family and friends. God gave me the knowledge to fight this terrible disease but he only knows the future. Tomorrow is another day.
Thanks for following me for the past year. I hope you have learned more about DMD and how through struggles there is still joy. Please share my blog to help bring awareness to Duchenne and remind others to check on their friends because we don't always tell others how heavy the burden is.
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