As I have said in multiple posts Wyatt goes to multiple specialty doctor visits and trial visits over the year. Once a year I bring Wynston with us and many times I regret my decision because they end up at each others throats. Well this year the boys didn't fight as much with each other as normal. The funny thing is that instead of them fighting with each other they decided to gang up on me. It was actually pretty funny...they were making jokes and laughing at all little things I would do. The boys would laugh and laugh at how aggravated I would get and would then laugh even more...and then of course I would laugh too. It truly made my heart full. I wish I could bottle up these times for when the times get tough.
So, I'm happy to say this year was much better. Maybe, well probably, because they are older now. On the day of Wyatt's trial visit Wynston watched in awe at how Wyatt was able to do the tests without complaints. Wynston even said, "there is no way I could do all of the things you are doing Wyatt...especially getting blood drawn and having an IV in my arm." Wynston was in shock that Wyatt and most boys who participate in trials have to walk for 6 minutes. To let you know, the 6 minute walk test is an archaic endpoint where the boys walk laps for 6 minutes and they measure the distance. Wynston also asked great questions while he was walking:
Why would they make him walk for 6 minutes?
What if he falls?
What if he can't do it?
He is going to be so tired...what if we can't go to the zoo?
These are all questions that we in the clinical trial world have because this end point is not only stressful for the boys performing it but also for those that love their trialblazer. Wyatt was exhausted after it but he didn't complain, he still wanted to enjoy the zoo and whatever else we decided to do that day. When we finished up his visit, we were able to enjoy some time together visiting the Santa Fe zoo, the Crayola Experience and then dinner.
All in all we had a great trip. Clinical trials are not easy but being able to have Wynston participate in the experience again this year was such a blessing. Taking my trialblazers together on a visit (trial or specialist) is something that I will make sure happens annually. I think it gives Wynston a little perspective and it lets Wyatt feel that Wynston is by his side through the hard times.
Comments