Can you believe that next week it will be 2022? As another year goes by we all say wow time sure flies or time please slow down. No one wants to let the days go by without appreciating what we are given but it becomes difficult with the very packed schedule of life. We don't want to just go with the flow, we want to make our time count. We want to be with out family and friends and make meaningful memories. But that is all easier said than done isn't it?
To recap 2021, it was hectic for many of us. It felt like a repeat of Covid 2020 with a little hurricane sprinkled in. Luckily we have been able to stay healthy and well this year and have gotten to do some fun things too besides getting a new roof, furniture and ceiling LOL. These last 2 weeks of Christmastime have been great. We were able to see extended family after almost 2 years. That's truly crazy to think about how long we hav been in this covid hell.
Now that everything has calmed down and the kids are enjoying their gifts I plan to take some time and enjoy the slowed down last week of 2021. The boys said the got "everything they wanted" for Christmas. Wynston got a virtual reality Oculus game system that gives him something to burn all of his energy on and Wyatt got lots of baseball stuff. Yep he still loves baseball even when he can't play like others his age. He even bought Wynston and Patrick new gloves so they can throw with him. But the new baseball stuff means Wyatt expects Wynston to stop what he is doing and throw with him at the drop of a hat....which doesn't always happen. The other day I could hear Wynston tell him that he didn't want to go throw and Wyatt started to cry and get angry. I went into the playroom and gave Wyatt a tight hug while he cried on my shoulder. As I hugged him I thought about how he must feel and then (Grab your tissues) Wyatt looked at me and said, "I wish Wynston understood that I'm losing my legs and I don't know how much longer I can stand and throw with him." My heart broke into a million pieces at that moment. I gently told Wyatt that he needs to explain that to Wynston, instead of just getting mad at him. (Obviously I was trying to hold myself together in front of him.) I then went and talked to Wynston myself and his face looked like what my heart felt like. Since that minute he has stopped to play with Wyatt when Wyatt has the energy. I am sure that it won't last forever, but if it lasts for this final week of 2021 I will be one happy mama.
Wynston then told me the next day he can tell that Wyatt's legs are weaker and that his arms can't throw for as long either. He said, "I don't mind throwing with him because he can't do it for long and I can stop what I'm doing so he can have fun. I just love him so much mom and I don't want things to change." This little boy has my heart. So many times he is wiser beyond his 12 years.
I rarely look too far into the future but I know that 2022 is going to be challenging as DMD continues to steal little pieces of my son. Every year there are more challenges and I just pray that Patrick and I can adapt easily. As Wyatt needs more from us daily I worry that I am not going to be able to do it. Many times he needs help from the toilet, help out of the bed and to get comfortable, help out of the chair etc. I pray for patience as being needed all the time while trying to do other things in the house makes for a snippy mom. I hope that I can take a breath before going in the room one more time and not make him feel like a burden.
So as we prepare for 2022's debut, Patrick and I plan to look at the calendar mark a few days for us to pause and enjoy some family time. Too often the days just blur together with the monotony of work and school so our resolution is to try not to let that happen this year and love every moment because as I have said many times before The days are long but the years are short.
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